Health Dictionary
Reliable, easy-to-read patient information on common medical conditions — written in plain language, free of jargon, and grounded in current evidence. Browse the most frequent diagnoses, understand what they mean for everyday life, and learn which steps and questions help you have a focused conversation with your doctor.
List of cystic fibrosis organizations
Introduction
The following organizations assist people with or do research into cystic fibrosis, a hereditary disease affecting the lungs and digestive system, causing progressive disability and sometimes early death.
Australia
Australia
- Cystic Fibrosis Australia[1] (CFA), an Australian national organization aimed at raising awareness and education of cystic fibrosis through advocacy and research
Europe
Europe
- Cystic Fibrosis Trust, a UK charity providing research, information and care for people with cystic fibrosis
- European Cystic Fibrosis Society[2] (ECFS), a Denmark-based organization of clinicians and scientists actively engaged in CF research, care and collaboration
- Association Grégory Lemarchal, a French organization dedicated to information outreach and research for cystic fibrosis, named after the French singer and Star Academy winner Grégory Lemarchal
North America
North America
- Canadian Cystic Fibrosis Foundation (CCFF), a Canada health organization funding cystic fibrosis research and care
- Cystic Fibrosis Foundation (CFF), a US non-profit providing the means to cure and control cystic fibrosis
- Cystic Fibrosis-Reaching Out Foundation[3], a US-based network of information and support for people with CF and their families
- Boomer Esiason Foundation, a US-based organization supporting research aimed at finding a cure for cystic fibrosis as well providing education and raising quality of life for people with cystic fibrosis, named after Boomer Esiason, a former NFL quarterback, whose son Gunnar has cystic fibrosis.
- Lungs for Life Foundation[4], a US-based organization focused on improving quality of life for people with CF through assistive services, education and research
- Elizabeth Nash Foundation[5], a US-based organization focused on research, education and patient support, named after scientist Elizabeth Nash
- National Cystic Fibrosis Awareness Committee[6] (NCFAC), a US-based group focused on increased public CF awareness through an annual national Cystic Fibrosis Awareness observance
- Rock CF Foundation[7], a US-based non profit organization that uses the arts, entertainment, fashion and fitness to increase awareness and raise funds for cystic fibrosis. Founded by Emily Schaller.
- Liv for a Cure[8], a US-based foundation dedicated to raising money for fight against Cystic Fibrosis.
International
International
- Cystic Fibrosis Worldwide[9] (CFW), an international network concentrated on increasing quality of life and life expectancy for people with cystic fibrosis
- CysticFibrosis.com[10], an internet information hub with support forums