Primary immunodeficiency epidemiology and demographics

It is believed that around one in every 1200 Americans has a Primary Immunodeficiency disorder. Conditions – there are over 130 recognised primary immunodeficiencies – common variable immunodeficiency, IgA deficiency, XLA, XLP all being worthy of mention in addition to those listed.

Patient support – there are a growing number of national patient organisations around the world to support those who are diagnosed or where one of the conditions are recorded in a family. Access via www.ipopi.org or e-mail info@ipopi.org [or] The Immune Deficiency Foundation [or] Jeffrey Modell Foundation (Links found under “External Links Section”)